Africa Sickle Cell Organization

Advocacy

ASCO engages and builds relationships with partners, stakeholders and allies for county, national and global Sickle Cell advocacy.

We engage in sustained advocacy initiatives to increase influence on decision-making around SCD at local, national, regional and international policy levels.

Our advocacy activities inform cic spaces i.e. public participation, county integrated development plans , informs county health systems , budgetary processes and policy.

We have strong relationships and agreements within and across the county. The county government department of health, local policy makers and the office of the first lady. This ensures good political will for continuous budget allocation and policy responding to sickle cell in the country.

Nationally, our advocacy informed National healthcare management guidelines, infant screening advocacy and essential medicines lists.

Globally, our advocacy informs WHO, Africa CDC, Africa Union and global/ regional response to sickle cell.

Impact on health outcomes and policy

Increased national priority for sickle cell

Ministry of Health has increased efforts to prioritize Sickle Cell policy nationally.

Increased funding for SCD

New partnerships established to strengthen early detection and healthcare delivery for sickle cell nationally.

Program areas

Awareness creation

To address stigma and misinformation

Capacity development

To address knowledge, skill and resource gaps

Research and Development

Impact assessment and evidence based programing

Advocacy

Inform county and national policy

Terms of Use

Africa Sickle Cell Organization (“we”, “us”) owns and operates www.africasicklecell.org (“the/our website”). Any person accessing and/or using the website (“the visitor/user”) agrees to the “Terms of Use”, containing the conditions, rules and other provisions with respect to the access and/or use of our website. If you have questions about the “Terms of Use”, please feel free to contact us at africasicklecellorg@gmail.com

Content

GENERAL USE

The material contained on this website is for information only. The website is entitled to be served as an information resource for the internal and external stakeholders of Africa Sickle Cell Organization, including the general public. Third-Party Websites Links to other websites are provided solely as a convenience and therefore imply neither Africa Sickle Cell Organization’s responsibility for, nor its approval of the information contained in these websites. Intellectual Property Any use of information from the website should have an acknowledgement of Africa Sickle Cell Organization/Third-Party as a source respectively, citing the corresponding uniform resource locator (URL).

Logo and Name The use of Africa Sickle Cell Organization’s name and/or logo is prohibited without prior express authorization from Africa Sickle Cell Organization. The access and/or use of the website does not permit to copy, reproduce, modify, distribute or elsehow exploit Africa Sickle Cell Organization’s name and/or logo except with the prior explicit permission. Abuse and Violation Any abuse or violations of the Terms of Use and/or Privacy Policy should be reported to africasicklecellorg@gmail.com.

DISCLAIMER

Africa Sickle Cell Organization renounces any liability or responsibility for any damages of any nature whatsoever resulting from the use of, inability to use, and/or reliance on the material and information contained on our website. Africa Sickle Cell Organization makes no representations or warranties as to the completeness or accuracy of any of the information available on the website as well as does not provide any warranties regarding the security of the content of our website or any linked websites.

Africa Sickle Cell Organization endeavours to make its best effort to keep the information accurate and updated on a regular basis, however this is not claimed to be exhaustive. Africa Sickle Cell Organization does not guarantee that the website is continuously available and error-free at all times.

PRIVACY POLICY

Africa Sickle Cell Organization is committed to protecting the privacy and security of visitors to our website. Outlined below is our online privacy policy for information collected through our website. If you have questions about these policies, please feel free to contact us at africasicklecellorg@gmail.com

PERSONAL INFORMATION

We constantly analyse our website logs to improve the value of our website. We do not use this analysis to record or track any personally identifiable information of our visitors. If you are asked to provide personal information such as your name, e-mail or/and postal address when requesting information, providing feedback, registering to a newsletter, or using any other functions of the website, be assured that all such information is considered by Africa Sickle Cell Organization both private and secure.

Africa Sickle Cell Organization does not share or sell your personal information to third parties. Under no circumstance will details be disclosed publicly, except in order to comply with any legal obligation. This policy reiterates that Africa Sickle Cell Organization fully appreciates the importance of online privacy and is committed to protecting your personal information.

Our website is enhanced by cookie files to personalize and customize the experience of our visitors and to support some necessary functions. Africa Sickle Cell Organization collects broad usage statistics using Google Analytics, to better understand how our visitors use our website, and to help us improve visitors’ experience. Such information includes the IP address (where available), browser type, and any additional information provided by a browser during the use of our website.

The statistical data about our users’ browsing actions and patterns does not identify any individual. You may choose to accept or refuse cookies by modifying your browser preferences. If you wish to get notified when a cookies are set, this option should also be available in your browser settings. Please note that if you reject some or all cookies, your experience at this and other websites throughout the Internet may not be complete.

PAYMENT TRANSACTIONS

To enable Africa Sickle Cell Organization to process any order or registration to an event, a secure online payment system may be used to process payments using credit card details. Africa Sickle Cell Organization will not be collecting or storing credit card details in our system.

THIRD-PARTY WEBSITES

Please be aware that other websites to which links may be provided, including social media, may collect visitor’s personally identifiable information when accessed. The information collection practices of other websites linked to Africa Sickle Cell Organization’s website are not covered by this Privacy Policy.

COOKIE POLICY

Some of our web pages utilise “cookies”. A “cookie” is a small text file that may be used, for example, to collect information about web site activity. Some cookies and other technologies may serve to recall Personal Information previously indicated by a web user. Most browsers allow you to control cookies, including whether or not to accept them and how to remove them.

Some cookies are necessary for the operation of our website, if you choose to block them some aspects of the site may not work for you. Non necessary cookies are only set when you have given your explicit consent to their use. Such cookies included those set by our statistics package Google Analytics.

We are committed to privacy and support current industry initiatives to preserve individual privacy rights on the Internet. Protecting your privacy on-line is an evolving area and this website will constantly evolve to meet these demands.